Thank you for visiting Behind the Gray. We are an online support community for those whose lives have been affected by a subarachnoid haemorrhage or stroke.
Our aim is to offer friendship, support and a place where you can share your highs and lows. We are not qualified to give medical advice, but hope that you can benefit from our own experiences and those of our families. Membership is free and we hope that you will join us and share your own experiences.
“During my own recovery, I have found the support of others who have been affected by a SAH or stroke to have been a great comfort. To be able to communicate with fellow sufferers and share experiences is of paramount importance and a great aid to recovery.”
Joining an online support group can often be an excellent way of coping with your illness. If you are experiencing difficulties after suffering from a SAH or stroke and have difficulty leaving your home, an online community can often be one of the greatest first steps in coping. You can maintain your anonymity which helps many become more candid about their feelings, fears and frustrations. You may also learn information and tips that you might not have been aware of about your illness or that of a loved one.
An account of my recent SAH (pre through to my present circumstances)
My account probably does not differ too much from many here. I am writing this partly for myself too help me get over what has been the most harrowing period of my life so far. I am also writing this in the hope that there maybe something within this that could help others as I have found that reading others accounts (although very distressing)has in a major way helped me understand more about this condition.
It all began on the morning of 19/04/13, I had just had an intimate moment with my wife (politest way to say it) when I felt an almighty pain in the back of my head, I went slightly dizzy. I thought nothing of it at first.
The next thing that happened was that I passed out momentarily during which time I wet the bed ( something that never happens). I knew something was wrong then and asked my wife to call the doctor, I then was sick. In the moments that my wife had picked up the phone I tasted blood coming from the back of my throat and spat out quite a bit.... read more
In May 1991 I underwent through extensive distal aortic descending surgery because doctors found a descending thoracic aortic aneurysm. In 2008 I had a big headache and I went to the hospital. After extensive tests and an arteriograph revealed one aneurysm of the left anterior choroidal and bilateral PCOM infundibulum. Also, I was diagnosed with Fibromuscular Dysplasia. I underwent a surgery with clipping.
In 2012, I went to Colombia to visit my mother and I had again a painful headache and a cerebral angiogram showed two aneurysms and had another brain surgery for aneurysm wrapping of the right posterior communicating artery and wrapping of the right anterior choroid artery.... read more
My problems first manifested themselves on a hot summer day in 1960. I was 10 years old and enjoying a game of cricket when suddenly I experienced a strange tingling down my left side rather like pins and needles. Initially I thought nothing of it but when it returned numerous times over the next few weeks and more strongly than before I decided to talk to my mum and dad. Before I knew it I was in front of my GP who sent me to a consultant and following numerous tests I was informed I had a mild form of focal epilepsy which was apparently caused by some kind of birthmark on my brain but the condition was never given a medical name.
It was 530pm i was preparing dinner and came in the living room to talk to my husband,who was home unusually early from work(how lucky),my 12 yr old daughter was upstairs(thankfully).
As i stood there i had a strange sensation like liquid running down the back of my head,i told my husband i felt funny as i stood there i said i really dont feel right,he got out of the chair held my hands and told me to sit down,he looked worried so i knew something wasnt right,turns out my eyes were rolling and my mouth was down one side,he thought i was having a stroke.
An ambulance was called and arrived very quickly,by now i was semi conscious and had been sick(which i dont remember).I was taken to A&E after a CT scan was confirmed i had SAH caused by anuerysm bleed.... read more