Thank you for visiting Behind the Gray. We are an online support community for those whose lives have been affected by a subarachnoid haemorrhage or stroke.
Our aim is to offer friendship, support and a place where you can share your highs and lows. We are not qualified to give medical advice, but hope that you can benefit from our own experiences and those of our families. Membership is free and we hope that you will join us and share your own experiences.
“During my own recovery, I have found the support of others who have been affected by a SAH or stroke to have been a great comfort. To be able to communicate with fellow sufferers and share experiences is of paramount importance and a great aid to recovery.”
Joining an online support group can often be an excellent way of coping with your illness. If you are experiencing difficulties after suffering from a SAH or stroke and have difficulty leaving your home, an online community can often be one of the greatest first steps in coping. You can maintain your anonymity which helps many become more candid about their feelings, fears and frustrations. You may also learn information and tips that you might not have been aware of about your illness or that of a loved one.
Hi everyone. My name is Ken. I'm 49 years old, and on October 19, 2013 I had left work early as usual for a Wednesday to make my way down town for night school. Night school courses for me are more like "recreational education" and I've taken courses in Mandarin, Interior Design, Manufacturing Supervision, and have gotten TEFL certificate to teach English overseas.
Anyway, as always, I was in a rush, and arriving home, I hopped into the shower. As I was rinsing off, I felt a huge pressure begin to build in the back of my neck. It last for about 20 seconds, then I felt it release, and the pain began.
It was the most pain I have ever felt, and having had ruptured discs in my back, I had my share of intense pain. I was able to make it into the living room, and called my lovely wife Ying, who was on her way to give my a lift to school. She was about ten minutes away.... read more
My name is Alison and I'm 49 years old. I have a husband and two grown up sons, a little Grandson and I also have 2 horses, 1 dog and an elderly cat.
My life changed on 9th October 2013 and I would love to hear from everyone. It is such early days for me and I am very anxious about what has happened to me and what might happen next! I will tell you my story ....
On Wednesday 9th October I was at home in my kitchen. I had a total knee replacement back in June, then another operation end of August so I had not returned to my working as I was still struggling with pain and walking too far. However, I had planned to visit my yard and have another small ride on my horse as I had just started riding again after many months!
Suddenly I had a severe headache which made me scream and lean over. It lasted probably a minute but then gradually reduced and felt like a migraine. I didn't know what it was but I was able to walk around. I took 2 Paracetamol and 2 Tramadol (given by my Doctor for my knee pain) and thought it was just a migraine. And no, I have never had migraines!... read more
I haven't been around here for a very, very long time. Life with children (13 years and 4years old as of today), family and all the rest is a busy thing.
I just got a pm from someone 9 months post-SAH, looking for info about my experience. I responded, then I remembered how incredibly helpful and useful BTG was for me in my first weeks post-SAH. The doctors told me I was fine. I knew I wasn't "fine". But it took me a while to realized that what they meant was there was nothing they could do for me.
Thank goodness I finally found BTG and all the helpful folks here. So, I figure by posting this I might be one of the helpful folks for someone else coming along post-SAH, confused and looking for answers, direction, clarity, or at least a little flashlight in the darkness. So, here's my story:... read more
I am not really sure where to start, it's funny I used to come on BTG everyday back in early 2012, then I eventually weaned myself off the site. No issues with the site or the content of the site just felt that for me to move on from the whole episode I needed to let go and get on with my life, so I did. I never registered just viewed stuff and took comfort from people 'brave' enough to share their experiences with a wider forum.
Why the sudden change? Not sure but this week I have had my second annual check up after suffering a grade 5 SAH in December 2011 and I think I am one of the lucky ones, hence I am writing this so someone reading this can hopefully derive some hope knowing that there is light at the end of the tunnel.
December 2011 - I was 42, overweight but not obese, ate too much of the wrong stuff and drank too much alcohol. Was not at deaths door but got into bad habits over the years and these began to take their toll. At work I also was pretty forthright, I would tackle things head on, was not afraid of confrontation and would not back down in an argument.... read more
My story all began with the birth of my second son, August 18th 2009. I went in the Wednesday morning for a scheduled c-section, and received a spinal block. Everything went great. I had a happy, healthy baby boy and my recovery was going wonderfully. I was up and going and actually feeling great.
On Thursday afternoon, I was allowed to go home with my baby boy and I was so happy to finally be together with my 5 year old too. He was a bit jaundiced, so we had a follow up on Saturday with his pediatrician.... read more
Hello to everyone. I just found this support group with my daughters help. I had my SAH on 04-09-12.
I awakened to the worst headache of my life at 2:00 in the morning. I struggled to get to the bathroom as I felt I was going to get sick. I just laid on the floor for a while then thought Id better wake up my husband and tell him I was very sick and my head was killing me. He asked if I thought I needed to go to the ER and I said no, I am just going to lie here, this must be what a migraine feels like.
I drifted in and out of sleep and had my son drive me to my doctors office. I told them I had the worst headache of my life and I was crying in pain. They took my blood pressure and it was 234/187. I knew I was in trouble then.... read more
An account of my recent SAH (pre through to my present circumstances)
My account probably does not differ too much from many here. I am writing this partly for myself too help me get over what has been the most harrowing period of my life so far. I am also writing this in the hope that there maybe something within this that could help others as I have found that reading others accounts (although very distressing)has in a major way helped me understand more about this condition.
It all began on the morning of 19/04/13, I had just had an intimate moment with my wife (politest way to say it) when I felt an almighty pain in the back of my head, I went slightly dizzy. I thought nothing of it at first.
The next thing that happened was that I passed out momentarily during which time I wet the bed ( something that never happens). I knew something was wrong then and asked my wife to call the doctor, I then was sick. In the moments that my wife had picked up the phone I tasted blood coming from the back of my throat and spat out quite a bit.... read more